Forrest Schoenberger
08/23/1998 to 02/09/2002

Picture of Forrest,
Spring 2000
Forrest, Spring 2000
 
Picture of Forrest,
Winter 2002
Forrest, Winter 2002
 
November 2, 2006

Our son Forrest was born August 23, 1998, and like all new parents, my husband Peter and I couldn’t believe how deeply we could feel love until we were holding him in our arms. I was 2 months shy of my 40th birthday, Forrest was my first and only child and I was the happiest woman alive.

22 months later, Forrest was diagnosed with a rare pediatric liver cancer called hepatoblastoma. One day he was a perfectly healthy little person and the next day he was not. His cancer was stage-4 at diagnosis and his prognosis for survival was not good at all. I wish that I could report a medical miracle here, but I cannot. The miracle I experienced was one of life and love so deep that despite Forrest’s death 18 months later, I am grateful beyond words to have been his mom and to have known such a remarkable human being. Peter and I count our good fortune in days, and we had 1266 of them with Forrest.

When Forrest was diagnosed, I had just finished recording Grapes and Seeds and I was looking forward to promoting the record with live shows. I wrote to my fans to let them know why my shows were being cancelled and was immediately enveloped in their support. That first e-mail was one of hundreds that I wrote spontaneously as Forrest, Peter and I lived with cancer, life, death and grief. Within weeks, there were people reading my on-line journal all around the world. In response, they would send us words of support, love and hope. Their messages literally sustained us. There were thousands of messages and we thrived on every one of them. So much good came from that internet conversation that I have decided to keep my e-mails on this website for people to read if they would like. I still get messages from families who are in the same boat that we were in and who have discovered this part of my website. It means a lot to me to hear from them, or from those of you who are just reading my thoughts out of curiosity. Mostly though, I keep all of these e-mails posted to keep the doors open. Forrest’s life was a time of such openness and such emotional intensity. My hope is that by keeping these e-mails available that I will be reminded – and perhaps you will be too – that openness is a good and powerful thing. It is something that allows all of us to reach out, to touch and feel and to support one another throughout our lives.

Thank you for your support of my family and my music. In Forrest’s absence, and because of the inspiration of his life and death, I feel more committed than ever to my work. I hope that my music will provide an opportunity for you to feel the deep stuff of your life. And more than anything, I hope that by knowing Forrest just a little bit, you will have a sense of the goodness that he brought to this world during his short life.

Much love,
Bar

If you are here visiting Forrest and me, please feel free to e-mail me directly. I would love to hear from you and to know what brought you here. Thank you.

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Mailing List

Bar has an email mailing list that was established for announcing her music related events and news, but it has become invaluable for diseminating news about Forrest and for documenting Bar and Peter's journey. Her most recent post is listed below.

To view a history of all Bar's emails, Click here

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Bar's most recent email:

Subject: Hello again...it's been a while
Date:  Sunday, April 6, 2008 -- 11:55am
Posted By: Bar

Sunday April 6, 2008

I think about dropping in for an email visit with you all so often,  
but then I think about how many millions of emails we all get and  
decide one more is just too many. Today, though, I can't resist.  
There's something about Sunday mornings and the quiet that we have up  
here in the mountains that makes me want to write. I just got back  
from an hour-long walk and once again, I got to thinking about you  
and wanting to check in and tell you a bit about what's happening.

Since I left Ocean Grove in November (was it really 4 months ago?)  
I've been writing more and more and am slowly at a place where I can  
show bits and pieces of my project to a few people. My writing group  
meets once a week (ostensibly) but winter weather, the flu, trips to  
sunny places and everyone's insanely busy schedules has meant we've  
only met 7 times in the last four months. I still try to get at least  
one section done every week as though we're going to meet. When we  
don't at the last minute I feel like at least I got something done.

The thing that's on my mind this morning is that I am getting some  
really sweet feedback from everybody, but I'm also getting to the  
stage where excellent writers are telling me what they need more of.  
And the thing they need more of is Forrest. The stories and my  
telling of them are working great for everybody, but they want to  
hear Forrest's voice. Well, needless to say, so do I! So now I'm in  
the realm of having to be a real writer and not just a secretary  
dictating the events of our life as I saw them. Now I have to learn  
how to write dialogue that represents this little person who mostly I  
can't remember (because that.s what happens when death takes someone  
that you love). The dialogue that I've already included is  
essentially verbatim. The bit that my writing friends are asking for  
comes from me using my imagination to recreate conversations that  
Forrest and I might have had. What I'm learning is that dialogue  
writing is an art form and I don't know how to do it.

Lots of questions come up: how can I make-up Forrest's words? Is that  
fair? If I make them up, are they true? Am I being honest? Can I  
possibly paint a picture of him in words? The nice thing that  
happens, though, is that I have to conjure him up to get the dialogue  
going. The need to include his voice is bringing him back to life  
inside of me. It's giving me a reason to dwell with him in my mind,  
and there's a lot of joy in that.

Here's an example: in one story, Peter, Forrest and I are in a toy  
store looking for something that we can use as part of a  
visualization exercise that I'm convinced will help cure Forrest's  
cancer. We tell him to look through the store and find the one thing  
that he really likes and that we will get it for him. Very quickly,  
he identifies an owl puppet that really floats his boat. So, I have  
to invent the conversation that might have happened after he's found  
the owl. When I ask him if owl is the toy he.d like to take home with  
him, would he answer "yes" or "yes!" or "sure" or "okay" or, would he  
just nod his head up and down? It's a challenge to figure this out to  
say the least. Every now and then I strike gold and I remember  
exactly what he would have said and those moments are wonderful for  
me. My hope is that in the end, all of his words will resonate as  
true for the people who knew him and also for the people who will be  
meeting him for the first time.

Another thing that has come up is that when I share some of my  
stories with my writing group, I'm reading to them as a mom whose son  
had cancer and who eventually died. Before I even start to read,  
they're preparing to be moved. So, since I'm more interested in  
knowing whether my writing of the stories is any good right now, I've  
decided that I need to read the stories as straightforwardly and  
unemotionally as I can. I try not to read to them as Forrest's mom  
but just as a neutral reader (which, of course, is impossible). In  
other words, at this stage of my writing, I want to make sure that  
the writing works for someone who knows nothing about me, or this  
story. I want to know that when a person picks up the book that they  
will start at the first page that they'll be drawn-in, that they'll  
finish the book, and that they'll feel good and full by the time  
they're done. That's asking a lot, but that's what I want.

So, I carry on. Being a writer suits me. I like the solitude. I like  
the focus that's required of me. I love thinking about it all of the  
time and having aha moments regularly. I find that writing words is  
easier on my ego than writing songs and that is a huge relief. I have  
been performing a lot, teaching a lot, and practicing the piano and  
guitar a lot, but I am enjoying the writing piece of my life very  
much too. Still not sure if there's a book to be published in the  
end, but there will be something and I'll get it together enough to  
share with you all eventually.

Thank you for being here for me. I hope that all is well where you  
are. I'm enjoying the spring that's blooming here. The irises are  
just sticking their necks out, and the daffodils are well on their way.

Enjoy the rest of the weekend.
Love,
Bar 



To view a history of all Bar's emails, Click here




Related Links

This section provides links to websites about cancer, liver cancer, and to real life stories. If you know of a website that would be useful to add, please contact us. This is not intended to be a comprehensive list of all cancer related sites-- we are trying to be somewhat selective to keep the list useable/effective.

Sites About Cancer

These sites provide information about cancer, and in particular, hepatoblastoma and other liver cancers. The sites at the end of the list are more technical and appear to be targeted at the medical community.

 

Real Life Hepatoblastoma Stories

Note: I believe all of these are real stories, but as is always the case with the internet, please be careful about the legitimacy of any information you read, particularly before contributing money or following medical practices. -- Steve

If you are here visiting Forrest and me, please feel free to e-mail me directly. I would love to hear from you and to know what brought you here. Thank you.


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